Tag Archives: #LEARNING

I just had to let it go

14 Jul

 

I guess I am Crazy, I still think I can make a difference. My friends and family would not understand my desire to got to #TEDTalks, Just like they did not understand my desire to make a documentary and just because I failed there is no reason not to try.  As far as I can tell life is about the trying maybe you can use that last line either way. When you grow up poor you don’t get choices you get reality and somehow we have to move and progress.

Dream Qualifications

I’m not sure there are any qualifications for a dream and why should there be. I never understood not trying. I learned early to acquiesce to a mad man and choices were luxuries that none of us could afford. Your only choice was get beat up or get someone else beat, either way someone was getting beat. I use to play this game with myself.  I called it, “invisible”  in which the object of the game was to get as close to invisible as possible and believe me if you chose to but I came as close to invisible as humanly possible. I had lots of choices in my head and I could travel to them in my mind. No one had to tell me to sit still it was nearly impossible to do anything else. You learn stillness early it settles you and yet is so uncomfortable,. Always waiting for the other shoe to drop or fist or belt or spoon or whatever was at hand. I suppose all writing is cathartic, but I feel qualified for my dreams.

Same as Not

I discovered early in my childhood that I was different and I don’t mean like I was weird. I just mean that my mind was wired different. I saw beauty in things easily, I knew I had value, I knew I had worth and although the harshness of my environment changed me, it did not change me for the worse. I have fought my feelings but again not how you might think. I fight that there was value in my childhood. That somehow someone would win if I acknowledged my own growth. It’s a bitter pill to swallow to associate your own strength with the abuse provided by another. I often find still I put out my feelers quickly and have a decent sense of people although the curse is you never know to what measure. I might feel someone is negative and not out for my good, but you don’t know to what measure. I have had to learn to love my differences and learned to realize I have a very unique perspective, so the sameness I craved I just had to let it go.

Spiritual Emergency

I have been drawn into health care for a reason and all though I am not a clinician I certainly feel that my dream of helping to change the nature of health care is a part of my tribulations. I see and meet so many wonderful people who are faced with such terrible basic health care, for most there is no basic health care and the only thing treated is urgent or emergent. I hear providers say, ” this patient is never going to comply”, and I always wonder to myself, ” then why take that course” .  I have come to believe that our crisis in health care is not only that patients are dieing but that providers are dieing as well. There desire to care for others is slowly drifting out of their own practice of medicine. I know we can rescue the spirit of health care providers I feel strongly that if given the tools and the chance most providers would flourish and the state of health care would dramatically improve. Somewhere inside me I know that there is a reason I try and get involved. I know what it feels like to have a damaged spirit and I know how to help people out of it. We can change anything we want to. Take back our health and say no more am I going to be a code, No longer will I sit back and allow this suffering.

We Don’t Have To

I have an idea of getting primary providers involved with cutting edge technology and design to reinvigorate their spirit of health care and to create medicine that is effective and prevention based, provides better access , and is more cost effective. It’s simple and achievable. we live in a world of Technology and design impacts are lives more times then most people realize. What if we were to think about medical applications first and then bring it to design. It seems to me that utilizing the latest technology should not be based on the technology first with medical applications being an after thought or a money grab. We could  get together thought leaders in multiple fields and create from the perspective of care delivery.

THIS IS WHY I WANT TO GO TO TEDTALKS

An idea worth sharing is what I have and I know that probably people better qualified than I am on paper but when it comes to the outreach and development I will give anyone a run for their money. My dreams may not be qualified but that does not reduce their potential impact.

Please help me get to Ted Talks, repost, republish, tell anyone, tell everyone, I know u can all have an impact in your own small way.

I can be contacted directly at helpmegettoTedTalks@yahoo.om

Don’t qualify your dreams

 

A wish worth sharing! Drug resistant TB and Photographer James Nachtwey

13 Jul

The fight against a devastating disease who’s numbers are on the rise.  A post worth forwarding. This disease is closer than you might think  Raise awarness!

james_nachtwey.html

www.xdrtb.org

Live short and Prosper

13 Jul

2012-02-immigrants-doctor.html

New study out indicates that Immigrants are not the healthy lot we thought they were.  I recently spoke with an er Doctor about a common issue that he faces; immigrants or what he thinks to be immigrants use the ER like Primary Care only they tend to come in with a list of issues. Many of their health issues could have been treated easily had they not waited. Many have chronic diseases such as Diabetes 2 and have never been treated. Many have respiratory issues that from xrays you get a feel that they are long standing.

I wonder how much it costs us to frighten immigrants, illegal or otherwise, into thinking that there is some reporting that goes on in Health Care. As far as I know I have never heard of any Doctor or staff reporting immigrants. I worked for an early childhood development program and we would see it all the time that immigrant families were hesitant to seek service for their children and even when service was rendered they often treated it to begin with, with mis-trust. This was double for the male head of house hold.

In this current political climate this problem is growing worse. I also believe that the money that outreach programs had for interpreters is long gone/ cut by many states. But I also wonder if there is something deeper here? Is this lack of outreach some sort of punishment or if immigrants are afraid to seek care is it somehow a way for our leaders to make it less likely some will stay.  I am sure no one on CNN will talk about healthcare in immigrant populations, but if we looked at this from a perspective of cost savings it is far cheaper to outreach and treat then it is to treat in an ER.

www.immigrantsolidarity.org

I believe that there are a number of  Health Care related issues that could be addressed right now and with far less money then what it costs us currently. Certainly Immigrants around the world face similar issues. These are not second class citizens! They were once our fathers and grandmothers and the people that bring life to a culture.

Brian Goldman: Doctors make mistakes. Can we talk about that?

12 Jul

 

How much do medical mistakes cost? 19.5 Billion per year study-puts-cost-of-medical-errors-at-195-billion This linkw will lead you to an interesting article on the costs of medical errors.

How can we fix a problem that is systemic.?

I have worked with many practices that have put no thought into prevention of errors and find that talking to physicians and medical staff about mistakes is like talking about abortion or politics. NO ONE WANTS TALK ABOUT IT! As if somehow the mere mention of errors would somehow make them happen.

I have seen investigations into medical errors and they are not singular in nature meaning that multiple parties are involved in most mistakes and a recurring theme always comes up: Not listening to patients and caregivers.

How can we change the mindset that the patient does not know what they are talking about when it comes to their own health?

How do we heal Healthcare and should we have thought of prevention?

12 Jul

We seem to be able to point out the faults of medicine, but how can we help our providers and patients better prevent and treat disease states.

#helpmegettoTedTalks

Day 7 Care Plan Oversight

2 Jul


I have been paying attention to the recent discussions on The Affordable Care Act and the medias coverage of the supreme court ruling. One thing strikes me as odd in all these talks, whose actually talking about the impact on patient care?

I CAN PULL A RABBIT OUT OF MY ASS
Just look over there while I do it.

I wonder if somewhere someone sits twisting their mustache, while laughing maniacally. Every moment spent talking about the act and not talking about patient care is a wasted moment.

I want to hear and read lively conversation on how to improve patient care.  Thats what this is all about, right ? How can I get better when I’m sick?   While Homer Simpson was studying not hitting his thumb he accidentally bashed himself in the eye instead.

Who is talking about primary care?

Who is talking about Care Plans much less Care Plan Oversight/CPO?

In my mind the only way to effectively control cost is to effectively treat patients.  Care plan Oversight/ CPO is the key.

care plan,

n strategies designed to guide health care professionals involved with patient care. Such plans are patient specific and are meant to address the total status of the patient. Care plans are intended to ensure optimal outcomes for patients during the course of their care.
I found this definition in a medical dictionary and thought I would share. When we talk about Care Plans we have to talk about managing Care Plans which is called Care Plan Oversight.
A good way to understand CPO is to think along these lines. Your Doctor orders blood work and then lets you know of the results and gives you options on how to treat any condition indicated,, that is care plan oversight/CPO. Now lets say you have an indication of Cardio Vascular issues, your Primary care Doctor refers you to a Cardiologist and then they work you up and the same scenario as before plays out, except this time your Primary care Doctor and the specialist should work up a Plan of Care together. Because ultimately there needs to be somewhere there to direct things medically and advise you on your options and it should be your Family doctor. Don’t get me wrong they do not tell the specialist what to do they help you implement what the specialist is indicating and fit that treatment into an existing Care plan.
Would you do a core part of your job if no one paid you for it?
Well guess what no one pays for it and the few like Medicare that do, Doctors are either afraid to bill for it or know if they bill for it they will have to be accountable.  When the accountability for Care Plan Oversight could be the easiest part of CPO. We could say billions if we could foster Care Plan Oversight and heres the good news !
We have the Technology and Design we just have to have an #IDEAWORTHSHARING
#helpmegettoTed so many medical applications for design and technology that already exist.

Day 5 Chipper a long read for a tall boy : )

30 Jun

I was thinking about the day that my son was born. He looked up toward my face and ,although babies are no table to focus, he looked straight into me as deep as anyone has ever been.
What a beautiful Baby he was, soft, gentle, easy, and full of laughter. How I cherished feeding him and him sleeping on my chest. The way he looked like as if formula was the most incredible substance ever known to man . A little reminder from my ancestors to be happy with what you have.

As he grew his personality thrilled me, warm caring, funny and smart, oh wat, thats me,,lol

He played from sun up to sun down. We regular had checks to check his development and not to sound like forest gump but I had concerns for years about passing on some of my learning difficulties to a child. I did not want a child to have to struggle as I did. My son hit all of his development markers and I felt a genuine since that his mother had given him her brain for numbers


Well as much as it pains me to say it and I know it has been read before but Everything Changed when he turned 3yrs old. He stopped trying to talk, he knee walked, and began to show signs that something was wrong. We were quick to take him to his pediatrician. Who then quickly referred us out to other providers. The dreaded no diagnosis turned into Developmentally Delayed.

His mother and I decided rapidly to pursue getting him treatment. Well SURPRISE Developmental Delay is not a reimbursable diagnosis, ” at least at that time”, So speech Therapy was all out of pocket . Until he got into preprek. We were so relieved to realize that the public school that was assigned to him ,based on geographic location, offered multiple services Speech and Langugauge Therapist, Adaptive physical education, all in a mainstream setting. We were so Happy about it all.

NIGHTMARE ON ORIOLE BEACH RD
We got him Ready for his first day of school, Did that fun school supply shopping thing, bought him great looking little shorts and shirts a brand new pair of shoes and safety scissors. Any of you that have children will identify with how cool an experience it is when you send them to school for the first time or at least that’s how I felt about it. We both bring him to school for orientation and then he steps up to the plate for opening day.
She seemed like such a mature and decent person his teacher impressed us with her patience and gentle guidance, We wanted very much for this to work and for him not grow up as I had,, hating school.
He immediately had problems, freaking Yuck, what kind of Karmic crap was this. He also nearly had to be scraped off us when we dropped him off. We thought well hes just having to adjust and it takes time. Then I began to notice that his teacher had a coldness about her. I have to be very careful with my judgment of teachers it is biased by my own horrible schooling and I an emotional element seems to creep into my view of teachers. I honestly believe that his teacher had this break em in kinda of mentality, probably better explain that one. : )
She felt it was her job and hell who knows maybe it was, to make children and families adjust to what would be the first of many years of schooling. So we suffered through, although I dreaded picking him up or dropping him off. Both situations were difficult and getting more so between my sons not wanting to be there and the brow beating about how had we done this and were we doing that. Sadly it did not seem like guidance it seemed more like a doubt of our parenting skills. As if somehow our parenting skills had somehow played a role in our sons development issues.
” By the way I will talk about this issue in a different post. I have direct experience helping families going through this”
It is a constant struggle to this day with his schooling, Individual Eduction Plans should be called “Probably not gonna get there’s ” and by the time you figure out we are not going to get there the school year is almost over. It’s a drag.

THE YEAR WE BROKE AWAY
This past school year came with that same sense that this would be a good year for him and for us. Well it was neither, it was the most difficult school year I could never have never have imagined the road we were heading down.
We started off the year with a bully, that did not immediately get found out or at least no one at schooled said my son was being picked on. We did however notice that he was really down on himself. which was not a thing that was in keeping with my son in the past. We also noticed more anger from him. We immediately suspected something was going on with him either at home or at school and I began talking to him more than I usually did about his day at school.

He began talking to me about mean people. It was as if his being could not understand someone could be mean to someone else. Eventually these conversations lead to an admission that one of his classmates was being mean to him. So, of course we contacted his teacher with his admission and were told the matter was being looked into. My son began to have dramatic behavioral outbursts at school. We were getting calls everyday about this incident or that incident. We recontacted his teacher and found out that multiple student were having problems with this one classmate, but none of it was happening to our son that they had observed. They would rearrange his seating and positions in lines to move him closer to a teacher or an aide. This seemed like a good answer to us. The very next week my son did something I would have never expected he had an outburst at school in which he threatened to kill himself and scratched his own neck and face. My heart immediately sank, how is it possible for a child his age to feel so bad that he wanted to die. What the HELL was going on at school!
We go to pick him up and are told that he was in danger of a baker act for observation. Horrifying words for any parent to hear. We requested an immediate meeting with the school administration and all teachers and aides working with him. Well one week of waiting turned into to 2. Finally. I had to email our rep on the School Board. The very next Day I get a call from school that we would be meeting in the morning. Wow sweet relief!
We sit down and meet with the principal and his teachers. The principle starts out with some BS statement she had prepared for this meeting without one mention of the Bullying. I asked, ” what about the bullying”, She said ., “what bullying”,. How can they not be aware, we had been in constant contact with his teacher in regards to this. Again WHAT THE HELL IS GOING ON here> I meet with people everyday and pride myself on my ability to speak to anyone. I could not speak to the principle at all. She would interupt me and kept mispronouncing my last name as well as denying that bullying had anything to do with our sons behavior. I was floored that I had to reminding her that we have every right to advocate for our son, as she looked at me with contempt in her eye. we make nice long enough to come up with some strategies to help my son and that the family of the child thought to be bullying would be talked to.
We send him back to school 2 days later and it happens again, an outburst in which he says he wants to kill himself and tries to hurt himself. I called the county and suggested that we needed a liaison familiar with children with special needs. I also established private testing for my son and counseling

We all met again and it was a much better meeting his teacher was very involved and the principle was no longer involved as directly. We came up with a plan to do school based testing, to have him observed, to give him a person he could turn to if he was feeling angry and that we would meet with everyone prior to the school year ending.

He IS From Me and I am Pretty Good
The meeting of course got put off till next year, but I learned something very valuable and I kind of feel that a lesson for me was a part of this. I learned that what I bring to my son is of real worth and that I did not have to feel lesser than because of my own education.
My son taught me to love myself again and that his crative loving nature is a part of me through him. I am so proud of him He just finished camp at the local zoo no issues : ) Loved it!
My son knows that I like Documentaries and creating so he made me a present. and It is my honor to present you with his present to me : http://www.cartoonnetwork.com/mixit/watch/music-greatest-jake—s The first part is an unfortunate commercial but his video follows.

I offer my son thanks, Thank you for loving me, Thank you for your kindness, Thank you for sharing your presence with me and Thank you for reminding me of that old voice in my head that says ” Why can’t I ” but most of all Thank you for being the person you are ! I love you with all of my heart and it is because of you that I will somehow make this journey to TED.